Sarcoma is a rare type of cancer. There treatment centers and programs that deal specifically with sarcoma. It is recommended that patients with desmoplastic small round cell sarcoma be treated by a sarcoma specialist. (However, it should be noted that desmoplastic small round cell tumor is also considered a Childhood Cancer. Because of its rarity, at the moment Pediatric oncologists (who share information through the Childrens Oncology Group may also have familiarity with the disease.)

One of the most common complaints with Desmoplastic is misdiagnosis and weeks of treatment that is ineffective. Regular oncologists may not have the expertise to manage this aggressive disease. It is critical to seek out a Sarcoma specialist at least to advise the primary oncologist.

The following is a list of facilities that offer adult and pediatric Sarcoma centers and programs.

Centers Specializing in Sarcoma


Cedars Sinai Sarcoma Program - Los Angeles, CA

Cleveland Clinic Sarcoma Interdisciplinary Clinic at The Cleveland Clinic Taussig Cancer Center -Cleveland, Ohio

Columbia Presbyterian Sarcoma Program - New York, New York

Dana Farber Cancer Institute - Boston, Massachusetts (617) 632-3000

Fox Chase Cancer Center - Philadelphia, Pennsylvania

H. Lee Moffitt Cancer Center and Research Institute at the University of South Florida - Tampa, Florida 888-860-2778

Joan Karnell Cancer Center at Pennsylvania Hospital -Philadelphia, PA

Johns Hopkins Sarcoma Center - Maryland. 410-955-2888

Massachusetts General Hospital- Boston, Massachusetts) 617-726-2070

The Mayo Clinic - Rochester, MN 507-538-3270

M.D.Anderson Cancer Center - Houston, Texas Referral 713-792-6161

Memorial Sloan-Kettering Cancer Center - New York, New York Physician Referral Service 1-800-525-2225

Roswell Park Cancer Institute - Buffalo, New York

Seattle Cancer Care Alliance - Seattle, Washington 206-288-1024

UCLA's Sarcoma Program - Los Angeles, CA

University of California, San Francisco - San Francisco, CA

University of Michigan Comprehensive Cancer Center - Ann Arbor, Michigan AnswerLine 1-800-865-1125

University of Minnesota Cancer Center - Minneapolis, MN

University of Utah Huntsman Cancer Institute Sarcoma Service - Salt Lake City, UT

Washington Cancer Institute - Washington DC

Washington Univeristy in St. Louis - St. Louis, MO

Other Sarcoma Centers and Programs

Children's Hospital of Los Angeles - California

Duke University Sarcoma Program - Durham, NC

Miami Sarcoma Group - Miami, Florida

Mid-America Sarcoma Institute - Overland Park, Kansas

Ohio State University Sarcoma Program - Columbus, Ohio

St. Vincent's Cancer Center NY, Sarcoma Program

Tucson Orthopedic Institute - Sarcoma Program

Univ of Calif Davis Sarcoma Program

Univ of Florida Shands Cancer Center

University of Minnesota Sarcoma Information Center



European Organization for the Research and Treatment of Cancer

Peter Mac Sarcoma Service - Australia

British Sarcoma Group


Children and Parents Against Cancer - Russia

French Sarcoma Group

Italian Sarcoma Group

Scandinavian Sarcoma Group

Sarcoma Germany

Soft Tissue Sarcoma People

Spanish Sarcoma Group

Union of charitable organizations of Russia - Russia

Hospitals and Cancer Centers

Medical Facilities


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