Groups by Year Diagnosed

Groups by Year Diagnosed

Key

 * Name, Age, Date Diagnosed, Passed Away, Location


 * = Survivors

In Memory

Commentary
This list of patients only reflects people who are known (through websites, contact, or the Yahoo DSRCT group) to have had DSRCT in the past fifteen years. This is not a comprehensive list of all patients who have had the disease. Thus be cautious when looking over the following data to not draw conclusions. Remember, no one is a statistic. All patients are individuals.

[ BACK ]

Diagnosed 2013

 * Surber, Jason 42
 * Sechi, Deidre Jan-13 Kansas
 * Wasco, Madison, 10, Jul-13

Diagnosed 2012

 * Bolles, Marcus 7, Dec-12 Astoria, Oregon Video


 * Quebedeaux, Kyle Feb-12 link

Diagnosed 2011
Terrian, Kyle, 18 Jan-11 12/2013 New Carlisle, Ohio Link

Smith, Josh 16, Jan-11 11/3/2011 Redcar, England UK

Alves, Ian, 15 Jun-2011 12/12 Horace, ND link


 * Smith, Michael 20,  Apr- 2011 O'Fallon, Mo.

Diagnosed 2010
Taylor, Xander 12, Jan-10 03/07/12 Tyler, Texas

Villarreal, Zephaniah 14, Jan-10 Florida Link

Pantalone, Nicholas 17, Feb-10 3/2013 PA Link

Hammon, Jesse 25 Mar-10 10/2012 Rigby, Idaho Blog

Klopper, William Apr-10 California Journal

Steiner, Matthew 37, Apr-10 Lyman, Maine MySpace

Blevins, Jack 26, Jun-10 1/2015 TN Link


 * Creech, Jeffrey 4, Jul-10 New York Link

Onkle, Alex 4, Jul-10 Missouri Link

Owens, Marc 17, Sep-10 Dublin, Ireland

Swieczkowski, Joffrey 20, Sep-10 1/13, Frisco, Texas Link


 * Thompson, Michael 7, Nov-10, Summerville, SC Article


 * Richard, Bernard Dec-10, Geneva, Switzerland


 * Booth, Brad 38, Dec-10, Helena, Alabama Link

Craig, Adam 23, Dec-10 3/2011 Cherokee, Iowa Article


 * McNulty, Renee 46, Tennessee

Steele, William Frisco, Texas

Dimitris Papageorgiou 11, Sep-10 03/19/2012, Athens,Greece link

[ BACK ]

Diagnosed 2009
Butler, Rhema 13, Jan-09, Olympia, Washington


 * Reese, Shawn Jan-09

Takamoto, Gavyn 14, Mar-09 4/1/2011 Pearl City, Hawaii


 * Nicoletti, Biagio 46, Apr-09, Italy

Areno, Jared Apr-09 3/7/2010 LA


 * Carneiro, Pedro Couto 18, May-09, Brazil

Brennan, Ryan Charles 16, Jul-09 Fairfield, CT Blog

Prince, Carl 36, Jul-09 08/04/12 LaGrange, Ill.

Hauser, Ashlynn 6, Aug-09 12/11, Virginia Link

Henry, Jonathan 22, Aug-09 New York Blog


 * Mogan, Rylie Hope 9, Aug-09 Illinois Journal


 * Davis, Mia 17, Sep-09 Jacksonville, Florida

Mossböck, Thomas 33, Oct-09 06/01/2011 Graz, Austria

Fish, Jason 31 Oct-09 5/25/11 Jacksonville,Florida Link


 * Grow, Bobby Nov-09, Vancouver, Washington Blog

Wheeler, Rory 27, 11/09 7/26/2011 Troy, MI Blog


 * McGoldrick, John 52, Nov-09, Houston, Texas


 * Moschner-Santoro, Michelle 24, Nov-09 Ohio News

Hylton, Amanda 22 Dec-09, Beckley, West Virginia My space

Palmer, Stewart 26, Dec-09 4/11 Grimsby United Kingdom

Nagavolu, Siddhartha 23, 2009 3/2011 Bangalore, India

Melanie, Tessieri 32, Sept 09 21/11/2009 Australia

[ BACK ]

Diagnosed 2008
Shannon Yoder, 23 Jan-08 4/10/09 Link

McMurray, Scott 19 Jan-08 4/27/2011 White Plains, NY Webblog

Dennehy, Denis Feb-09 Killarney, Co. Kerry, Ireland


 * Charlie Futhey, 5 Feb-08 Rose Hill, KS Link

Shelly Ann Smith, Mar-08 Link

Jason Roy, 22, Mar-08 12/12/09 Link


 * Larry Statler, 24, Mar-08 Markham, Ill

Steve Rettke, 24, May-08 Rochester, NY


 * Barry Apr-08

Ben, Dameian 9, Apr-08 2009 Tuba City, Arizona

Hargrove, Taylor 18, Apr-08 3/20/2011 Texas Journal

Bradley Dycus 26, May-08 11/9/10 Lawrenceville, GA Blog Journal

Jourden, Anthony 30, May-08 12/30/10 Michigan

Cory Monzingo 19, Aug-08 12/15/10 Texas Link


 * Peters, Marijke 29, Aug-08, Belgium

Randy Clark, 35, Oct-08  2/10/09Lexington, SC Link

Weimer, Ashley 18, Nov-08 6/2011 Indianapolis, Indiana

Dao, Ben 32, Dec-08 2011 Nev


 * Lacey, Alonzo 16, 2008 Inkster, Michigan Link

Webberly, Elijah 13, 2008 12/22/10  Florida  Link Facebook Facebook - Sharing our memories of Elijah Webberly OB'M

[ BACK ]

Diagnosed 2007
Stanfill, John Doug 36 Jan-07 5/12/11 Woodland, CA

Eppinette, Daniel 26 Jan-07 4/29/11 Little Rock, Arkansas Link

Bigmore, Chloe Jan-07 12/8/07 UK Link

Austin McDonald 14, Jan-07 4/20/08 Mississippi

Ryan Hutchinson 10, Feb-07 4/29/08 Roanoke, Virginia

Robert Holland 14, Mar-07 9/07 England

Chase Sullivan 19, Mar-07 4/15/10 Tulsa, Oklahoma Link

Reyna, Henry 21, Jun-07 7/24/08 Inglewood, California In Memory Video


 * Lillard, Kyle 17, Jun-07 Talala, OK Link

Joshua Parrish 27, Aug-07 11/1/08 Sierra Vista, Arizona

McDowell, Larry 51, Aug-07, 10/2012 Cambridge, Ontario, Canada

Shaw, Ryan 19, Aug-07 7/18/2011 San Antonio,TX Link Ryan200717

Mark Briscoe 27, Oct-07 1/24/09 Roseville, CA Link

R. J. Lipsky 29, Nov-07 2/16/2010 Newton, MA Link

Schmidt, Nick Champaign, 28, Nov-07 11/29/10 Illinois Link

Canário, Ana Rita 35 Dec-07 9/21/08 Lisboa, Portugal Blog


 * Wilson, Scott, 29 Dec-07 Ontario, Canada

McElveen, Jessica 13, 2007 12/12 Tyrone, Georgia

[ BACK ]

Diagnosed 2006
Joshua Medlin 19, Feb-06 9/30/11 Hughesville, Maryland

Smith, Kyle 14, Feb-06 9/19/07 Midland, Michigan

Daniels, Stacey Micoli 23, Mar-06 7/27/09 Lockport, NY.

Noa Joly-Messier 16, Mar-06 12/19/07 Laval, Quebec, Canada

David Gilbert 21, Apr-06 1/27/08 Toronto, Ontario, Canada

Jackson Palmer 5, Apr-06 Fishers, IN

Connor Steventon 11, May-06 Isle of Man, UK


 * Raymond Alaniz 10, Jun-06 Sanger, CA

Christian T. Braswell 40, Jun-06 8/30/10 Lago Vista, TX

Joshua Gruver 20, Jun-06 12/11/06 Gainesville, GA

Robert Luciano Filoso 27, Jul-06 08/21/06 Ottawa, ON, Canada

Bright, Matthew 7, Aug-06 9/14 /08 Charlotte, NC

Karwacki, Renee 21, Sep-06 10-21-07 Sharpsville, Pennsylvania Obit Owens, Cole 6, Oct-06 8/2015 Mo Link
 * Brunello, Jacob Oct-06 Mount Shasta, California

Maggie Stahl 16, Dec-06, Tucson, AZ


 * Jones, Stacey 20, Dec-06 Columbus, Mississippi

Ray Knowles 15, Dec-06 Barrington, New Hampshire


 * Simmons, Diana 6, Dec-06 Chesterfield, Virginia Link MISSPRINCESSDIANA

Samuel W. Marx 18, 2006 7/29/2009 Vancouver, WA

Waller, Eugene 13, 10/29/07 Southfield, MI

[ BACK ]

Diagnosed 2005
Marlena Hodges 24 Jan-05 7/27/07 Lynchburg, Virginia

Sheila Murray 39, Jan-05 2/1/07 Massapequa Park, N.Y.

Jordan Budimir-Hussey 21, Jan-05 03/20/06 LaSalle, Ontario, Canada

Daniela Retana 13, Feb-05 08/24/05 Washington, D.C.

Dustin Hickie 15, Feb-05 09/10/05 Morris, Manitoba, CA


 * Luthiger, Michael 49, Feb-05 California

Michael Wilson 14, Mar-05 07/25/05 Franklin, Tenn.

Steven Brill 18, Mar-05 01/21/06 Florida

Nathan Robertson 17, Mar-05 2/11/08 Thomaston, Maine

Patrick McGill17, Apr-05 9/26/07 Modesto, CA


 * Shinan 26, May-05 Z.J., China

Steven Skurat 29, Jun-05 11/09/06 Louis, MO


 * Nalish Sharma 36, Jun-05 New Zealand

Leroy Gutierrez 22, Jun-05 12/26/06 Portales, NM

Middelman, Erik 43 Jun-05 6/09 Arnhem, The Netherlands

Michael Kiyici 11, Jun-05 1/6/08 Germany


 * Callie Rodabaugh 17, Sep-05 Lake County, FL

Meliza Orantes 30, Sep-05 9/10/10 San Francisco, CA Journal

Vikki Lowe 22, Sep-05 2/27/07 Derry, NH

Trent Ueckert 15, Sep-05, 8/9/07 Texas

Bender, Michael 27, Sep-05 9/8/08 California Blog

Patrick Beasley, 21, Oct-05 4/11 Kansas City, Mo Link Prayers for Patrick

Caleb Hobbs 30, Dec-05 Terre Haute, IN

Nicole Bodjanac 21, Dec-05 02/26/07 Norton, OH

Ryan Wippert 21 Dec-05 4/6/07 Milwaukee, WI

[ BACK ]

Diagnosed 2004
Mark DeWalle 21, Jan-04 6/13/07 St. Louis, Mo.

Chris Oberholzer 30, Jan-04 01/29/06 Queensland, Australia

Christopher Burrage 33, Jan-04 01/01/05 Boston, MA

Matt Bera 34, Jan-04 08/06/05 Sacramento, California

Keegan Ott 15, Feb-04 10/9/06 Cooperstown, N.D.

Michael "Mikey" Friedman, 15, Mar-04 10/5/08 New York

Ryan Vodicka 24, May-04 3/11/09 Omaha, Ne

Brittany Stanaland 12, Jun-04 03/29/06 Bonifay, Florida

Payne, Steven 15 Jul-04 10/15/09 Chicago, IL

Juan Vargas 25, Jul-04 01/28/05 Houston, Texas

Zach Ramsey 22, Aug-04 Arkansas

Jason DePew 15, Oct-04 Passed Away 9/11/07 Springboro, Ohio


 * Ann Zrodowski 9 Nov-04 Gdansk, Poland

Frank Quigley 57, Dec-04 11/2005 England

[ BACK ]

Diagnosed 2003
Philip Childs 17, Jan-03 12/17/03 Suffolk, England

Nicola Corry 23, Feb-03 05/23/05 Bristol, England

Patrick Scranton 40, Feb-03 05/05/05 Houston, Texas

Kamusoko, Alex Jr. Feb-03 5/18/05 Georgia Foundation

Jasmine Shield 7, Feb-03 10/11/04 Fort Worth, Texas

Dave Stanley 15, Mar-03 06/11/05 Suffolk, England

Jade Pusey 30, Apr-03 01/29/05 Riverton, Utah

Nikki Schaut 12, Apr-03 11/23/07 Oakdale, Minn.

Rebecca Cloer 25, Apr-03 6/21/08 Fort Collins, Co.

D'Ondre' Parker 27, May-03 10/1/06 San Antonio, Texas

Craig Jenkins 41, Jun-03 10/17/06 Park City, Utah

Nikole Liles 10, Jul-03 06/17/04 Magnolia, Texas

Ricardo F. 22 Jul-03 9/12/09 Rio de Janeiro, Brazil

Stephen Kuhn 13, Aug-03 09/06/04 Dallas, Texas

Gene Shaw, Jr. 15, Sep-03 09/03/04 California


 * Jordan Marquis 12, Oct-03 Connecticut

David Zucca 40, Dec-03 7/13/06 Stratford, Ontario, Canada

Christos Mouktaroudes 29, Dec-03 02/28/05 Limassol, Cyprus

Ken Voss 31, Dec-03 05/23/05 Naperville, Ill.


 * Mellen, Claire, 23 Dec-03 Link

Anthony Minutoli 10, 2003 07/23/03 Australia

[ BACK ]

Diagnosed 2002

 * Bond, Matt 29 2002 Kansas Link

Thomas Stokes 7, Jan-02 09/03 Virginia

Jay Daunoras 38, Feb-02 10/19/05 Shamong, N.J.

Alex Fisher 27, Feb-02 08/02 London, England

David Byrd 32, Mar-02 10/19/07 Haymarket, VA

Tobias H.Toshiaki 17, Apr-02 12/25/02 Singapore

Robert Broude 17, Aug-02 12/18/04 Manchester, England

Sara Pitts Aug-02 04/03 Kansas City, Missouri

Jennifer Rogers 16, Sep-02 07/13/04 Kentucky

Dennis Drake Sep-02 08/03 Philippines

Christopher Carfi 14, Sep-02 05/08/05 Turnersville, N.J.

Swicegood, Shane 30, Oct-02 6/1/09 Knoxville, Tenn.

Shawn Bidleman 30, Nov-02 11/20/08 Durand, Mich.

Keith Kozlowski 28, Nov-02 12/29/05 Baltimore, Maryland

Dr. Yu-Chieh Su 2002 12/02 Taiwan

Malcolm Withnall 2002 02/03 Sydney, Australia

Carl Croft 2002 '07/03 Chicago, Ill.

[ BACK ]

Diagnosed 2001
J.S. Liu Feb-01 11/01 Taiwan

Matthew Saville 17, Feb-01 02/01 Fredericksburg, Va.

Chander Nagpal 19, Feb-01 06/01 India

Lindsay 41, Mar-01 01/02 Canada

Matthew 24, Mar-01 04/15/02 Australia

Hugo Perez Diaz 21, May-01 12/02 Puebla, Mexico

Alex Urdaneta 22, May 01 06/01 Miami, Florida

Chad Martinson 29, Jun-01 12/25/03 Bemidji, Minn.

Thomas Pete Munoz 19, Jul-01 08/24/03 Louise, Texas

Steve Rodman 45, Jul-01 02/03 Dallas, Texas

Ineke Schwartz 39, Sep-01 04/08/04 Netherlands


 * Greg Orgel 13 Dec-01 Toledo, Ohio


 * Anthony Spithakis 2001 Edmonton, Canada

Stacey Montford 11, 2001 10/21/05 UK

Mario Pagan 7, 2001 03/20/02

[ BACK ]

Diagnosed 2000
Craig Brock 20, Jan-00 06/01 Cowan, Tenn.

Unitas Lewis 33, Mar-00 05/21/02 Maplewood, N.J.

Stacey Cowley 8, Mar-00 04/00 London, England

Kyle Jones Apr-00 04/00 New Madrid, Missouri

Dan Fox 16, Apr-00 09/06/02

Ben Bittner 10, Apr-00 2001 Pennsylvania

Brad Kirkpatrick 29, May-00 12/28/02 Salem, Mass.

Jacob Williams 12, Jun-00 06/05/03 Iowa


 * Kyle Nailor 6, Jul-00 Windsor, PA

Kerry Chellsen 23, Jul-00 05/25/03

Nia Jones Aug-00 11/00 Wales

Brian Bishnow 25, Oct-00 02/01/04 Waco, Texas


 * Joseph (Joey) Porambo 29, May-00 7/19/01 San Jose, CA

BACK]

Diagnosed 1999
Derrik Ray 5, Mar-99, 08/01 Abilene, Kansas


 * Thomas Falkenstein 31, Jun-99 Germany

Chris 33, Aug-99, 09/00

Jeff Adomanis 16, Sep-99 10/27/01 New Jersey

Gerry Webber Oct-99 8/2000 Brazil

Brian Reichle 21, Oct-99 12/18/01 North Olmsted, Ohio

Harrison Price 8, Oct-99 04/09/02 Imperial, Mo.

James Dwyer 32, Dec-99, May-00 Albuquerque, N.M.

Jordan Slater Dec-99 05/04

Gerrit Baar 1999, 07/00 Germany


 * Kristen Luder 9 (Kristen Salmans), 1999 Kansas City, MO Facebook

BACK]

Diagnosed 1998
Paul Gonzales 19, Jan-98 04/11/01 Ontario, California

Derek Wilson, D 31, Feb-98 05/05 Pass Christian, Miss.

Chris Bruyere Apr-98 06/04/00


 * O'Reilly, Katie 19, Jul-1998 Minnesota

Kent Mc Intyre 20, Dec-98 02/02 Comox, Canada

Rusty Sweany Dec-98 05/31/01 Fort Worth, Texas

Sean Luzunaris 13, 1998 09/09/01

Richard Berman 34, 1998 09/29/00 Medford, Oregon

Bob McCarthy 1998 1999 Philadelphia, Penn.

BACK]

Diagnosed 1997
Michelle Thomas 28, Aug-97 12/23/98 New York, New York

Timothy Mays 17, Aug-97 5/26/98 Cleburne, Texas

Jerry Abram 30, Sep-97 06/14/99 Bloomington, Ind.


 * Richard Spencer 24, Oct-97 England

Sarah Taylor Gibson Oct-97 07/17/00 Canada

Andrew Ness 8, 1997, 05/02 White Lake, S.D.


 * Sheldon, Bill 1997 Galesburg, Illinois Article

BACK]

Diagnosed 1996
Brandon Thompson 17, Jan-96 10/05/99 Minnesota

Stoker, Steven 12, Jan-96 12/1/97 Virginia

Timothy Lunchuck 16, Jul-96 04/30/97

Hayley Hendricks 12, Dec-96 10/26/97 Nevada

Maria Schlegel 31, 04/10/98 Zurich, Switzerland

BACK]

Diagnosed 1995
Tim Ryder 33, Feb-95 07/96 West Virginia

Greg Kelly 20, Jun-95 08/14/98 Allentown, Penn.

Adam Sellers 16, Jul-95 09/97

Pamela Smith 35, Nov-95 08/06/01 Olean, N.Y.

BACK]

Diagnosed 1994
Cavalon B. Givens 17, May-94 01/31/96 New Jersey

Kevin Kennedy 25, Dec-94 5/23/05 Torrance, California

BACK]

Diagnosed 1993
David Denault 33, Oct-93 09/98 Cranston, Rhode Island

Diagnosed 1991
Ryan Eric Schafer 12, Feb-91 12/07/95

Back